i can issue 1

Editor's letter: Patient power

There has been a lot going on since efforts to modernise our cancer services began a couple of years ago. The appointment of a National Cancer Director (Professor Mike Richards, who writes for us in this issue) and the publication of The NHS Cancer Plan helped put the disease at the forefront of people's thinking. But although the UK has some of the best cancer services in the world, there are still too many variations around the country in the way that services are delivered.

One of the most encouraging things I've seen in recent years is the growth of patient power. The UK Breast Cancer Coalition and Cancerlink (now part of Macmillan Cancer Relief) have been at the forefront of helping patients to have a say in what happens locally. They work with people to help them understand the NHS, and to be able to hold their own in meetings with healthcare professionals and hospital administrators. Now, the NHS aims to set up Patient Forums in all its trusts – an opportunity for patients up and down the country to speak out about cancer and other health services.

I've recently been involved in a Citizen's Panel looking at breast cancer services. A group of volunteers came together for several days, listening to evidence and making recommendations for the future of the services. It showed me that you don't need to be an expert in the NHS to make a contribution. Everyone who is willing to listen, learn and contribute can have a say in this kind of initiative.

Keep your eyes peeled for what's happening in your area – and if you think you can make a contribution, go for it. As Margaret King said when I interviewed her for this issue, it's very rewarding when your views make a difference. And no one knows better than a patient what cancer services should look like.

Jean Mossman, Editor